Research

Research

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Our collective and independent research informed the development of the script for Cracked. During the development of Cracked, we held additional focus groups with people living with dementia and their family members, we visited and engaged with people living with dementia in long-term care homes, and we explored the consequences of stigma for people living with dementia using the arts. We also drew on past research conducted by the researchers. Some of the research themes related to our vision of changing dementia culture include: the importance of bringing relationships in all their diversity to the forefront of care and living, valorizing memory in all of its forms, nurturing self-expression and reciprocal engagement, and fully supporting the humanity and citizenship of people who are living with dementia and their formal and informal carers.

Research Related to the Themes of Cracked

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The Partnerships in Dementia Care Alliance, aims to challenge the tragedy discourse that surrounds dementia and build upon the culture change process. To do so, they have partnered with researchers, persons living with dementia, their care partners, artists, and actors to create various arts based projects that share individual experiences of dementia.

In this arts and community-based research project we brought persons with dementia, family members, visual and performance artists, and researchers together in a one-day workshop to explore the implications of the tragedy discourse for persons and families experiencing dementia and worked with them to begin to create an alternative discourse. Working collaboratively, eight visual and poetic expressions were created that reflect what persons with dementia want the world to know about them: despite loss and sadness they are supported by loving networks, embracing life, remaining active and engaged, breaking the silence, and transforming with new possibilities. The visual and poetic expressions were chosen to be featured at an installation at LabCab, a multi-arts festival in Toronto, Canada, in July 2013. It was also featured at the Toronto Rehabilitation Institute-University Health Network, Innovations Gallery in 2013 and was so successful that it was invited back for a second showing. A story on the art appeared in the Kitchener Record Fall 2013.

Publications:

– Dupuis, S.L., Kontos, P., Mitchell, G., Jonas-Simpson, C., & Gray, J. (2016). Re-claiming citizenship through the arts. Special Issue on Citizenship, Dementia: The International Journal of Social Research and Practice. DOI: 10.1177/1471301216637206. http://journals.sagepub.com/doi/abs/10.1177/1471301216637206
– Mitchell, G., Dupuis, S.L., & Kontos, P. (2013). Dementia discourse: From imposed suffering to knowing other-wise. Journal of Applied Hermeneutics. Available at http://jah.journalhosting.ucalgary.ca/jah/index.php/jah/article/view/4

Model of Relational Citizenship

Embodied Selfhood

Elder-Clowning

Creativity (Dance, Music – to Be Added Later)

Publications:

From Person-Centred to Authentic Partnerships

The Partnerships in Dementia Care Alliance

Publications

Research on the Development of Cracked

Gray, J., Kontos, P., Dupuis, S., Mitchell, G., Jonas-Simpson, C. (2017). Dementia (re)performed: Interrogating tensions between relational engagement and regulatory policies in care homes through theatre. S. Chivers and U. Kreibernegg (Eds) Care Home Stories: Aging, Disability, and Long-term Residential Care, (pp. 105-120). Bielefeld, Germany: Transcript-Verlag. https://cup.columbia.edu/book/care-home-stories/9783837638059

Research Related to Evaluations of Cracked

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